As you all know I am a huge fan of the Bullet Journal and I am an even bigger fan of my three fabulous children, each of whom has their own special needs (sometimes known as Special Educational Needs or SEND). I am not however, a fan of the system...
It’s not often I do a ranty style post but I have had one of those weeks when I am just proud that I have managed to get out of bed each day and even prouder that I have actually managed to get dressed! So here goes. As you know, my...
When you are working with families, in any shape or form, here are a few tips on practices that don’t help, can help and really do help. Working with Families: If you click on the image, you can download this as a pdf. Print it off and keep it as...
Why can we not just say thank you and move on? This is something I have been thinking about for some time. I like to give compliments but I am useless at receiving them. Why are compliments hard to accept? These are actual compliments I have given in the last few...
It’s been a strange few months here in Chaos in Kent. A few months where I have realised that choosing myself does not necessarily have to be selfish. Choosing Myself is essential if I want to have a life worth living. Choosing Myself: I made the decision last month to...
Today. The reality of living in the Special Needs Minefield is rarely reflected in the case notes held by practitioners. Yes, they may cover the basics and some go into a bit of detail but what isn’t in there is the emotional turmoil this journey brings. A few years ago,...
So much is written about how to get a diagnosis; what the criteria is for a diagnosis and what to do when you don’t get one but little is written about how it feels to get the diagnosis. As a family, we’ve collected many a variety of diagnosis along our travels....
I wanted to share with you some of the videos of our Blindfold Challenge – the challenges in the Chaotic Kent household. J’s Dad tries to make toast and butter it. J’s sister tries to feed the dog J’s fab PA tries to make a ham sandwich It really made...
Today, I attended my son’s school so he could serve me with tea and toast. This sounds very simple. However, J is blind. Simple life skills become more of a challenge when you cannot see. To make you realise how challenging it can be, I am throwing down the gauntlet and asking...
Have you, as a parent, ever sat down and thought “is this it?” Have you ever sat in despair wondering if it would ever get better? It’s heart breaking and it hurts but it is nowhere near as painful as hearing your child say those words to you. It has...
