Why is it that when you have read everything you can about your children’s known conditions, another one pops up to knock the wind out of your sails? Why is it that your children’s conditions cause such mayhem and turn your life upside down in a way no one can...
Today has been one of those days when I wanted to just say “stop the ride, I want to get off”. Yesterday my gorgeous youngest son started to have unexplained black outs, so as we have an amazing GP, we went along last night. We had to return this morning...
This song was released in 1985 so how come almost 30 years later, the lyrics are still so appropriate Walls come Tumbling Down You don’t have to take this crap You don’t have to sit back and relax You can actually try changing it I know we’ve always...
Earlier this year, we had a really rough time as a family. With the death of an aunt and a beloved grandad within 4 weeks of each other, my husband tried to cheer me up by buying tickets for us to see Simple Minds at the O2, supported by Ultravox,...
After years of being involved with parent carer forums, I have made the decision to move on to a new challenge. This decision has been hugely daunting, as despite any frustrations the role may have brought to me (as any role will occasionally do), it was also a role I...
How often have you gone to bed and thought “oh I didn’t manage to get X, Y and Z done”? How often have you made yourself feel bad about the things that you have not managed to achieve? Why do we do it? Why are we so hard on ourselves?...
I have been approached by a magazine and asked for my views on the following: How should SENCOs involve parents in the decision making process and plan for their child? What can SENCOs do to improve co-production and communication in general? What types of questions do you think parents will...
As a parent of three children with a variety of SEN and Disability, I often said “I just wish they would show me some respect”. One day I was challenged to define what I meant by Respect, so I went to several parents like me and asked. This is what...
Desperate for attention, Katie H is out there spouting her views again – sadly no one has told her of Mr Lincoln’s quote – “Better to remain silent and be thought a fool than to speak out and remove all doubt” Here are just a few extracts from “Planet...
The last few weeks have been full of harsh reality checks; those moments when reality just slaps you hard across the face. They hurt. One of the big ones was the sudden unexpected reappearance of my gorgeous boy’s coping mechanism for anxiety. This is something we haven’t seen for almost...
